Insperation

Big thanks to St Thomas's and Bowley Close Rehabilitation centre for inviting me alone yesterday! Bowley Close is the centre where I go for sockets, prosthetics and anything related. I got to meet all the staff at the centre yesterday that I wouldn't neccesarily see when being treated and everyone was so welcoming!

I got to talk to the workshop staff who make my sockets and who take real pride in their work and find this makes me even more motivated to achieve my goals:) Also talked to the head of the technology department about the possiblility of getting involved in trilling new cycle legs and running blades. It's all very exciting, at the end of the day I know I am lucky enough to have the genetics to excel in triathlon, I work relentlessly which is another important part of the puzzle but every bit of the puzzle has to be there and technology is one of them. 

I meet a very inspiring young girl who at age of 20 had to have multiple amputations after ilness and is walking and back driving already! She was there to press the button to start the Paralympic light show on the Houses of Parliament. I think I have seen her at Bowley before but didn't notice that she was an amputee, I think over the years of treatment I don't take as much notice of physical differences between people.

Very inspiring for me to meet someone with such strength of character!!!

Start of Tapper for Strathclyde Paratriathlon

I did my last hard session before Strathclyde yesterday, 1200 meter run followed by just over 20K on the bike and a 5K run where I did another PB again 22:12. An average pace of 7:08 min miles, was happy with this for a training session and it bodes well for my future target of sub 20 min 5K!

Plan for the rest of the week is just to do short sharp sessions to keep myself feeling fast, I' m in great shape so just looking forward to it now and will be allot of fun.

Recent Results

Fowlmead Midweek Duathlon 9^th May

14:41 1.9 mile run & T1/ 30:33 10 mile bike & T2/ 16:53 1.9 mile run/ 1:02.07 overall.

17^th out of 24.

British Paratriathlon Championships 26th May

Swim 750M open water 14:09/T1 02:57/Bike 20K 33:57/T2 01:33/Run 5.6K 29:43  overall 01:22:19

3rd Place. 

Fowlmead Midweek Duathlon 27^th June

13:11 1.9 mile run & T1/ 29:19 10 mile bike & T2/ 14:01 1.9 mile run/ 0: 56:31 overall.

Joint 19^th out of 39.

Fowlmead Midweek Duathlon 25^th July

12:59 1.9 mile run & T1/ 30:29 10 mile bike & T2/ 13:30 1.9 mile run/ 0:56:58 overall.

20^th out of 43.

Ashford Wheelers 10 Mile TT

20^th June 26:40, 12^th out of 30.

04^th July 26:07, 15^th out of 27.

Canterbury Sprint tri 1^st July

7:40 400M pool swim/  2:26 T1/ 39:09 20K bike & T2/ 23:04 5K run/ 1:12:19 overall.

36^th out of 177, 5^th  in age group.

Lydd Mid Week Sprint tri 11^th July 500M/20k/5.4k

9:37 500M open water & T1/ 38:25 20K bike & T2/ 25:38 5.4K run/ 1:13:40 overall.

15^th out of 39.

Lydd Marshman Sprint tri 29th July 700M/24K/6K

14:47 700M open water swim/ T1 2:58/ 41:58 24K bike/ 1:09 T2/ 29:05 6K run/ 1:29:50 overall.

  9th out of 30, 4th in age group.

Summer Break

I broke up from uni for the summer in may about a week before the British Paratriathlon and have been looking for work ever since, which isn't great! I still have 3 years to do at uni but need to at least work part time as I have a mortgage and live by myself. I always look on the bright side though, Iv had no money but have had time to watch our amazing Olympians doing great things and such an inspiration! I will also be going up to St Thomases on Wednesday they are marking the Paraolympics opening ceremony with an event to let Para Athletes talk to people about their sport and promote themselfs and invited me to come allong. Really looking forward to it and will try and head over to the park to see whats going on at some point!

My training since the end of may has gone brilliantly and for the last 8 weeks I have been preparing for Strathclyde International Paratriathlon on the 2nd September, a week tomorrow. It couldn't have gone any better over the last couple of weeks, knocking a minute off my 800 meter swim, a minute off 20K cycle and over 2 minutes off my 4 mile run. I have also been practicing the transitions all the time and T1 (swim to bike) has come down from 2 minutes to get my wetsuit off and get my leg on and now only takes 30 seconds a massive time saving! It is however a little unfortunate that this week the swim leg at Strathclyde has been cancelled due to poor water quality in the lock, due to weather conditions. So now it will be a duathlon, im a little disapointed after so much improvement on my swim and T1. It will be a 1500 meter run, 21K bike and 4.6K run which is okay as I have made massive improvements on the run but it's still not as stronge as my swim or bike. You never know on the day though and I have done loads of speed work on the track, either way really looking forward to it!!! My rest day wasn't till tomorrow but have taken it early and will take tomorrow off aswel and then start my tapper. I took today off as although my heart rate varience was showing a really good reading my lymph noddes in my groin were a little swollen to say the least. Its just a result of work, money stress and the build in training intensity but is very important to take rest when needed, we only have one body, look after it:) It's just the immune system doing it's thing I have had it in the past after operations or bad stressed weeks and with a couple days chilling and rest they go down. Mum, Dad and my brother as always are so supportive of everything I do and Mum and Dad have given me the money for accomadation which is a life saver as I just wouldn't have had the money!

On the same day I do Strathclyde my brother will be doing Hellvelyn Triathlon so we will travel so fare up together, head off to our different races then meet up again. He has a van so will go as fare as the lake district with him stay a night there then the following day get a train to Motherwell and stay the night there then race the next day. After the race in the afternoon will get a train back to the lakes to meet up with him again. It will be a little manich but should be allot of fun too as my triathlon coaches live there after moving there a couple of years ago so will meet up.

I think I have also had two new sockets since June the last is brilliant as for the first time all I need is the first gel liner and no cotten socks to bulk it out. Christina, my prosthesitist does a brilliant job and also managed to get me different suspension liners as my other ones would tear on the sockets while cycling then leak air, these ones are reinforced around the knee which makes sense. The sockets I have now are allot more deffined and sculpted as my stump shrinks down and takes shape they will no doubt keep changing but they are so helpful at Bowley Close and always happy to help however they can.

British Paratriathlon Championships (7 months post amputation)

British Paratriathlon Championships 26^th May 2012

750m lake swim, 20K bike and 5.6k run.

Build Up

I decided to put in my entry to this event just 4 months after my amputation after talking to one of the girls in the Paratrithlon British Team who was at the TCR show. By the day of the event I would be 7 months post op and couldn’t see why I wouldn’t atleast be able to complete the course, even if I didn’t break any records. The preparation leading up to the event was steady but with lots of mechanical problems with punctures and problems with stump socket fits and problems with the suction socket liners tearing and leaking. I felt that the things I could control though were going very well, basically getting fitter and fasterJ.

The event was being held at Nottingham Water Sports Centre so my brother Phil had said he would drive me up the day before as I need to be classified before I could compete. The Classification was very relaxed and done by the BTF physios who were very friendly and helpful. I new they were physios as soon as I mentioned I wanted to hop to T1 so I could get my wetsuit down on the move rather than use my crutches. They managed to talk me out of it thoughJ. I was classified as category 5 which I think is anythone who has a problem in one leg below the knee so it wouldn’t just be amputees in my category but people with lower leg injuries or congenital problems below the knee.

There were three other people in my category, one an amputee and I knew from looking at past results they had all been doing it for years and were all very strong so I would just give it everything and use it as experience. At this stage I had nothing to lose as I am still in the rehabilitation stage, so just go for it!

Briefing  

The briefing was brilliant because they went through how I would be helped out of the lake to my crutches, from there to my bike where my prosthesis would be and then we all went down to T1 to set up. T2 was in a different area but only about 20 meters away on the other side of the track so no big deal. In category 5 you are allowed one helper which I had volunteered my brother Phil for that role which he seemed really happy to do.

Swim

There was an option to swim non wet suit as the water was 21C and I can believe that as it felt like a warm bath. As everyone else seemed to be going for the wet suit option I decided to follow suit. I had left my prosthesis over by my bike ready to go so headed over to the water on my crutches which felt strange to be using crutches again! All the different categories of paratriathlon would be set off at the same time so we was pretty bunched up in the water with everyone trying to get the best starting line including me. I new the start would be a bit of carnage but that was probably a bit of an understatement. I had some one go over the top of me just after the start and was getting kicked by two of the swimmers in front, one was a guide as the other was visually impaired so they was tethered at the ankles. As we all jostled for a good line over the first 300 meters I started to get some clear water and it wasn’t like I didn’t give as good as I got. With open water swims you just have to go out hard, if nothing else just to get some clear water. It was tough out to the turn point because there was a strong head wind blowing down the lake which made it very choppy and you had to just gut it out. At the far buoy you had to head across to one on the other side then head back to the start. As I headed round the buoys I still had people around me which I saw as a good thing as I hadn’t been left in the wake. The swim on the way back I tried to push the pace even harder because a couple swimmers had dropped back from me but one was with me stroke for stroke all the way back and we kept clashing on and off. I kept wondering whether it was someone in my category but found out after the race it was Steve Judge who is in category 3 and who I have chatted to by email and Facebook over the last year. They managed to save his legs after a terrible accident using the same frames they used for me. It did make me smile though when I realised after that it was him I was going stroke for stroke withJ He is a really good bloke and was happy to offer advice when I emailed him last year!

T1

My brother is a star!!!!

Phil was brilliant, after 2 people had pretty much hoisted me out of the water and given me my crutches (thank you to them!) I headed over to Phil on a very unsteady leg, tired shoulders and with a giddy head. All I can say is it went smoothly and Phil did a brilliant job doing one thing while I was doing another, like pulling the rest of my wet suit off my ankle while I got my cycle helmet and leg on then he had the bike off the rack ready for me by the time I had stood up!

Bike

The 20K bike section consisted 4 laps round the lake so you couldn’t go wrong and although there is no traffic it is not closed to the public or swans ducks and geese. So anyone doing the national relays keep your wits about you. Keep an eye out as one racing wheelchair swerved to miss someone and ended up in the lake and another bike written off after swerving to miss some kids that ran across in front of them! I fortunately had a very uneventful bike, very windy and straight into the head wind going out each time so just ground it out but it was pretty hard going! When you rounded the bend at the end of the lake you knew you would be flying on the way back so just kept grinding it out when heading into the wind and was passing lots of peopleJ Also be careful at the end of the lake as it is a very sharp corner and coming back past transition on each lap as although it is a tarmac course round the lake it’s rough as hell coming back past transition.

T2

Again went very smoothly, just stayed very calm and saw where my brother was standing and as I came in he racked the bike. I changed my shoes and no problems this time with the leg coming off and I didn’t need to put a dry liner on this time either or put dry socks on the stump even though it was sweltering!

Run

I went out on the 2 lap 5.6K run feeling very good but by about a quarter of the way round I just died on my feet, I just hadn’t taken in enough water on the bike and now felt horrendous. I had given everything on the swim and got completely battered and worked hard on the bike and I wasn’t about to give in. I was dehydrated and my stomach felt like it was in knots, I knew I was going slowly but just thought to myself keep putting one foot in front of the other and try and keep the cadence high. Every time I got onto the very long straight along the lake I would check back to make sure there was no one in the distance behind me with a blade on because I knew he was a strong runner and I was in no shape for a sprint finish. I managed to up the pace on the last 400 meters even though I could see way back in the distance down the lake and there was no one but felt the sooner I get across the line the sooner I could get some fluids. I had no problems with my socket or the liners in this run which was so nice I had just run out of gas, I had given it everything!!!!!

Never been in so much pain and run so slowly but saying that for my first year, over the moon with the overall time and came in 3^rd place, with a time of:

Swim 14:09  T1 02:57  Bike 33:57  T2 01:33  Run 29:43  overall 01:22:19

 It was so cool to come away with a whack off great big medal for my first year, I’m a very happy chapJ

Thanks for all your support,

AdeJ

 

2010 Diary for KCHLRT Web Site

Written in 2011 for the Kings College Limb Reconstruction Trust Web Site

Adrian Heathfield has been a patient for seven-and-a-half years. He is on his fifth frame, stuggling to get benefits, putting up with the public staring at his frame and even being abusive, desperately trying to keep fit for his planned swim across Dover Harbour in summer 2011. And yet, despite it all, he remains positive and upbeat. This moving diary is an inspiration to all. It also highlights how physio and counselling have been essential to his mental and physical well-being.

Adrian's diary

Writing a diary of my highs and lows in 2010 was a problem: it has been an exceptionally tough year, with many good times too, so I decided to write a general diary instead. I would like to thank all the people who have looked after me at Kings, not just Mr Groom’s team but many more too numerous to mention. You are all in my thoughts and do a brilliant job!

January - a new role with the Tri Club and bad news on the benefits front

After a fun-filled Christmas and New Year it is back to reality. The month started well. My pin site infection looks like it is under control so I started swimming again, and it went well considering I took three weeks off. I didn’t have a rest from the physio as I suffer too much if I do; everything just locks up in my calves and foot and makes it very uncomfortable. Giving the swimming a rest for a while gave me some rest time.

I took over as membership secretary for Ashford Tri Club and have been very busy as membership is up for renewal in January. Hopefully I will do as good a job as my predecessor Christine. She also started the club but has now moved up to the lakes. The club in general has supported and encouraged me so much on my short return at the beginning of last year and also when my leg re-broke.

I received a letter from Employment and Support Allowance (ESA) saying that I am not entitled to help as I scored zero on my medical back in November. I have appealed the decision in writing and will hopefully get a reply back soon.

It is five months since my fourth frame has been put on but the x-rays this month show very little growth. At least I was allowed to use only one crutch and hopefully this will stimulate the bone to grow.

February - Fitness is suffering and pain is increasing

I had infections for about a week, took antibiotics and they finally did the job. I think it might be best to ask Mr Groom to move the pin as it always seems to be the same one causing trouble.

I did swim when I could but it was very on and off depending on whether the pin site was weeping. My fitness is beginning to suffer a bit after the last couple of months of on off infections and the Christmas break.

I am still struggling with my general mood. I appealed the ESA decision and they paid money I wasn't expecting. It looks like they may have ruled in my favour but it feels like I am always fighting for the scraps.

I am still on one crutch outside. I am not sure how it will go until it all starts to settle down a bit. I am suffering a lot of pain across the top of my toe and up the foot. I am still getting pain in the bottom break site which feels quit sharp but this doesn’t mean that it will not unite. I am also getting a numbing sensation at the top site which happens now and then even though it is completely united. I am going up to Kings every week to see Helen (the unit’s specialist physiotherapist) for physio. These sessions are hands on work (myofascial release, deep tissue massage, trigger point management and frictions) as they know I do enough exercise at home.

March - Talking to sports science students and searching for work

I had a small operation to remove the problem wire down by my ankle and replace with a half pin. We were hoping this might stop the burning sensations I get across the big toe. It hasn’t but at least it won’t keep weeping and getting infected now.

I gave a talk about the frame to sports science students in Maidstone. This part of their course is about sports injuries and the psychological impact, although you can’t really explain the psychological effects without giving some physiological background. I talked and answered questions for about an hour and a half and really enjoyed it but felt really tired afterwards. There were about 25 in the class, all very young and they had never seen a frame before. They were a pleasure to talk to as they showed a genuine interest and asked tons of questions.

I have been looking for work now for three months, have sent out loads of applications but have not had any luck as yet. All the applications have been for office based work but employers don’t seem to be interested. You have to be honest but with the number of people looking for work I get the feeling that as soon as employers see my history, they just bin my application. I’m feeling very disheartened but just have to keep going.

I rang the ESA about my benefits and they said that because of the back log my appeal case would not be heard until about July. I am just receiving the appeal benefit rate and it just doesn’t cover the bills.

I came off the crutches at the end of this month which was a nice 35th birthday present. The leg is still very uncomfortable but it feels so good to be without crutches and it’s a move in the right direction. Hopefully it will stimulate the break site to fuse. The physio has been going well and I have been given the okay to use my adapted exercise bike. Using the bike when I can’t swim will make things a little more interesting.

April - New swimming record and a wine tasting to remember

Swimming has gone well since I started again. I have had a good four weeks with no operations or weeping pin sites. This good routine has produced results. I have managed to swim three times a week and my 1000 metre times are improving. I also did my fastest 1600 metres in a frame by a couple of minutes so far. The physio is still going well. The leg is feeling much stronger after Helen gave me a few more different exercises to increase weight bearing which is also more interesting for me.

I’m still looking for work but as yet have not got anything. All I can do is keep sending out application forms and CVs. It would be nice just to get a couple of interviews as I have applied for so many.

I went to a frame awareness and training demonstration put on by Helen for physios in the South East NHS Trust. I really enjoyed talking to them in small groups at the end of the session. I also learnt a lot about the frames and how they can be used for different things. There was much I did know but a good percentage that I didn’t.

I went up to Bromley Town Hall by train for a wine tasting evening in aid of KCH LRT and had a brilliant evening. A big thanks to Karen (clerk to the Trust) for the work she put in and for the good company, it was a fun night.

May - Still no work and a new operation looming

Things have just gone from bad to worse. I haven't found a job yet and my leg will not unite if left as it is. It has also deformed so the medical team are starting again and they have put me on the list for the operation.

Mr Groom is going to do what he did with my third frame: cut the break site out, compress it with the frame and use the stacked frame again to stretch it from a proximal corticotomy.

I still haven't heard when the ESA benefit court case will be but am not too worried about that at the moment; it will happen when it happens and I will just be happier when they get me in for this operation so I can start improving again.

The thought of amputation is still in my mind even when things are going well but I will go along with the frame. In the long run I really just don't know. All the effort I put in to try and find work has just gone down the drain again because there is no point until I have had the op and have recovered a little.

I am membership secretary and a coach for Ashford Tri Club. As East Grinstead sprint triathlon was the club’s target race for this distance I went along to cheer them on. We had over 20 members taking part, quite a few competing for the first time. After the race we all got together for a meal and a few well deserved beers.

June - Abuse from the public and a new coaching role

Some Irish psycho stopped his car and had a go at me while I was waiting at the bus stop. He was looking at my frame as he drove past and nearly drove into the central reservation, then came back and started accusing me of staring at him. His partner was in the car with him and I think he just felt really embarrassed. I wasn't about to get into an argument with him; he came across as a bit unhinged and I just bit my lip.

I have stopped looking for work at the moment as I am going back into hospital to start again on my leg and no one will take me on at this point. I will start again as soon as I am out of hospital and a little recovered. I am keeping busy getting fit, as I always recover much quicker from operations when I am.

I have passed my Level 1 British Triathlon Federation coaching course, so have been coaching swimming pretty much every week. The swimmers are all improving by the week, which is nice to see. It also helps keep me motivated as I can’t let the younger ones get too far ahead of me. This makes me push myself when I start to lose motivation, I can’t let the frame be an excuse.

I was planning to go over to mum and dad’s on Father’s Day but dad got taken into hospital with appendicitis which turned out to be gangrenous. It was lucky it got caught in time and he had it taken out that night. He came out of hospital at the end of the month and it is good to see him making a good recovery and enjoying what we have of the sun.

July - Successful operation but infection sets in

On the 1st of the month I did an endless pool session with Trilife who coach and test triathlon. I really enjoyed it. I received brilliant coaching from them and some good underwater footage to use to improve my technique when I start swimming again after recovering from my operation on the 7th.

The call to go up to Kings on the 6th did not come until 6pm, so by the time I got on the ward it was nearly 9pm and I felt completely shattered. The operation the following day went well and to plan. They also sent bone samples to micro biology to make sure there were no underlying causes stopping the leg from re-uniting.

This is my fifth frame and the pain is no better or worse than usual. I always expect it which makes it very easy to deal with it. The worst thing you can do is try and fight it; sometimes it is best to just accept it and go with it, serenity.

Unfortunately I can’t control infections and micro biology found a very small bone infection that would need a short course of antibiotics. As they did more tests the infection became more serious and unusual - Propioniibacterium acnes - and they weren’t sure what to treat it with. After treating with Vancomycin for just over two weeks I had a picc line inserted. I have to be given Teicoplanin at home every day by the ICT. I am a little unsure of having people I don’t know coming round. I would rather give it to myself but I won’t be able to connect the picc line to the syringe with one hand. The picc in general was a big issue. Mr Groom’s team said that I wouldn’t be able to swim with it in and that I might need to keep it in until the bone unites. I know from past experience that this could be a long time. I wasn’t happy and to say I was distressed would be an understatement, but I know that if it needs doing it needs doing.

I have always had a really low resting heart rate and have always competed in different sports, sometimes at a very high level. Those looking after me have always seen this as me just being very fit but not this time, which was the final straw. The ECG and echo came back clear. It was low but strong and to be expected with my background. With everything else going on, it just puts a small doubt in your mind that I could have done without. Everyone keeps asking if I will be glad when I go home; it just feels like for the first time, I have nothing to go home for.

I’m back home now and the ICT nurses are all really nice. However, in the first week, the line came out about four inches when they changed the dressing. I spent the morning at our local hospital getting an X-ray to make sure it didn’t need replacing, and luckily it was okay. It could have been partly my fault because I didn’t realise I wasn’t supposed to do any heavy stretching. That means my plan to do some weight training is out of the question until the picc line comes out.

So it looks like it will just be physio and core stability training for me.

I’m trying to stay upbeat for people but feel pretty numb at the moment and just mentally shattered.

August - How to control pain and depression sets in

I have been waking up about five times a night. I can control pain and just ignore it while awake but can’t control what is happening while I am asleep. I go back to sleep within a couple of minutes of waking by just slowing my breathing and relaxing but, with these breaks in my sleep, I am waking up shattered. After talking to Debbie (limb reconstruction nurse) and saying I don’t want to take sleeping tablets as they wipe me out, I have started taking Tramadol at night just to help take the edge off the pain. It is a pain killer, not a sleeping tablet, but I’ve used it in the past and it takes the edge off the pain while I am asleep. I am feeling more rested when I wake up now, even though my sleep is still broken.

I have just about finished the distraction and everything is nicely in line. The muscles are very tight and my daily physio sessions have really helped. It does get a little gutsy but it stops contractures and eases pain, so is well worth the effort. You can’t complain if you’re not prepared to do anything to help yourself.

I have pushed myself relentlessly now for about seven and half years and think it has started to take its toll. I can’t really explain but it just feels like someone has flicked a switch off and I can’t turn it back on: I’m not getting anything sorted out, I can’t look back, am not interested in what happens in the future, everything is upsetting me and I am just so tired! I spoke to Debbie and Helen who have always been so supportive, and also to Miss Phillips. I then spoke to Mr Groom who wrote to my GP. He has organised for me to start counselling. Just knowing I can get things off my chest made me feel better.

September - The benefits of counselling

I finished the distraction prescription this month which is brilliant as the skin and muscles where starting to get so tight. I managed to avoid contractures by doing loads of physio. The bone is nicely in line, the length is back to normal and there are signs of growth which is very encouraging. All my blood tests have been normal since coming out of hospital. They were before I went in as the Propionibacterium I had is unlikely to raise inflammatory markers. Micro biology are unsure how long I should keep taking Tecoplanin. If I had metal work going across the break site they advised that I should stay on the Tecoplanin until we achieved union. As the metal work I have goes into the leg but not across the site they don’t know, so we will just continue until the beginning of next month.

I had my psychological assessment for counselling. The very pretty young woman who assessed me was very nice but she did seem to be a little distressed by the end of the session, so it is better that I will be seeing another therapist. Things have been a lot better though, just knowing that I will be getting some help and will be able to talk to someone who doesn’t know me. Friends have been very supportive but, like I told them, it is not something they can help with. When I see my friends the last thing I really want to talk about is problems, I just want to have some fun.

Tri Club had its standard distance club championships at the Lydd race. I couldn’t go and support them as I was having treatment that morning, but met up with them for a late lunch and a catch up. It was really nice to see one of our old members and the former men’s team captain come along. He is in the army and is based in Bermuda. He is over here for a couple of weeks and came along even though he wasn’t very well, good company and good food.

October - Back in the pool and happiest I have been all year

I made a bit of a snap decision and got my car back. I can’t really afford it but it has given me some freedom and my own space. When I use the bus I sometimes get one too many questions when I don’t really want to talk about it, especially to complete strangers.

I stopped taking Teicoplanin at the beginning of the month and three weeks later the line was removed after further blood test came back normal. However, it was unlikely to show in the inflammatory markers. I hope my mood will improve and that I can start exercising again. I just need to motivate myself to do it. It was a little strange that I didn’t miss the exercise while I couldn’t do it or perhaps I just accepted it eventually, I don’t really know.

I started swimming again with the triathlon club but just did my own thing as I have had no exercise for three months and carry twice as much frame on my leg. It did feel good to be back in the pool but only for the first length; the rest of the session just showed me how unfit I was and I didn’t enjoy it at all but felt unbelievably positive afterwards and probably happier than I have been all year. I have also started doing some weight training at home but again am very weak. Although I haven’t really put on any weight, I have lost a lot of muscle and really struggle with body weight exercises. I know it will improve with time and regular training.

Weight bearing increased from touch to 50% but within two weeks a wire snapped. They do go sometimes, especially close to distracted sites, it is just wear and tear, but is a bit of a pain just as things where improving. Debbie removed the wire which was very uncomfortable and they will replace it as soon as possible with a half pin or maybe two, just to stabilise the frame a little better. It is back to touch weight bearing for now and also ease back with the harder bands with the physio.

November - A wire snaps and a day out at Charlton Athletic

I had two half pins put in at the start of the month to replace the broken wire. There were very few options as to where they could be positioned as I have half pins there already. It is also just below the knee so is very sore and has reduced knee mobility by about 50%, but we can sort that out with physio. I can only do touch weight bearing for four to six weeks as they want the pins to anchor properly. This also means more mobilising rather than building physio again.

The counselling has been brilliant. It only really highlights what I already know, but I find it an outlet as I don’t have to worry about upsetting the person I am talking to and don’t have to care what their reaction is or what they might think of me. Unfortunately my local health care trust will only give me six sessions. They have now come to an end so I am very happy that Mr Groom has arranged a counsellor for me at Kings. The initial review is at the beginning of December.

After the skin healed around the new pins I started swimming again. This and the physio I do in the pool is really helping the mobility in my knee. Everything is very backwards and forwards at the moment. I can’t really get settled into any real progressive programme but it is better than not being able to do it at all and I have done it all before. You just have to be a bit relentless in your pursuits.

I spent an afternoon at Charlton Athletic football ground helping to collect money for KCH LRT. It was so nice for me to talk to people who were so friendly and giving. After a very strange year it kind of puts your faith back in the fact that people in general are good.

We had the first snow fall of the winter and now I have the car back I quite like it. Looking back on the snow last year and being back in the frame waiting for buses, it was hard and cold. Having the car makes life a lot easier. Trains are so unreliable that I have missed a couple of appointments.

While the original break site being compressed is showing good signs of uniting, the proximal site is not and there seems to be very little happening. I think it is just growing slowly but Mr Groom thinks there could be a cyst. I have booked an ultrasound but the earliest appointment is on 13 December. It might be better if there is a cyst because at least there would be a reason for it not growing. It would also give micro biology a chance to see if the Propionibacterium infection has cleared up. Debbie is going to organise an Exogen machine for me to try and stimulate some growth. I used one about six years ago and it worked for a while, so is worth a try, even just to kick start some growth.

Dad got shingles after recovering from his appendicitis operation. It was not great as it was on the face and he then suffered the nerve problem which often comes after shingles. Thankfully he is a lot better now. He is not one to complain for nothing and I know he was in a lot of pain. I am just glad it didn’t last for years like I know it does with some people.

December - A new problem with a cyst but it's a wonderful Christmas

The pesky snow was back at the beginning of the month. It looks pretty but I would rather have just a tiny bit. The trains just give up so I ended up missing quite a few appointments at Kings.

I have only been swimming once a week. It’s going okay although I am still struggling with my fitness. It will take time but I have until next July to prepare for my sponsored swim in Dover Harbour, so it should be fine.

The ultrasound showed a big cyst in the proximal site. It measured 27mm by 19mm. I didn’t expect it but at least it can be treated and micro biology can check that the infection has cleared. This would be a big worry off my mind. It might seem a strange way of looking at it but in the past when I have had non union problems there has never been a reason for it, so to have something that can be treated is quite positive for me.

I was admitted to have the cyst removed and cement beads inserted in the proximal site. I have now had the sutures removed and the skin is healing very well. It is very red but I’ve been told this is normal with the beads.

I only managed to swim for the first two weeks of this month but have done some weight training and a lot of core stability work every week. I feel like I am starting to get some fitness and strength back which I hope will help when I eventually get back in the pool.

The Ashford Tri Club Christmas do was a brilliant evening I think. I can’t remember much after about half way through the evening as members were keeping me well topped up with red wine from the second I got in the door. Thanks guys and girls, not for the hangover though.

Finally five days before Christmas I got a letter from the employment and support allowance saying that the tribunal had taken place. I said I wanted a hearing so I could hear what was being said but was told not to split hairs. However, they ruled in my favor which is the important thing. It has taken over a year on appeal but I got there.

Christmas was brilliant. I spent it with my mum, dad and my brother at their house. I ate way too much, drank way too much, and the scales really tell the tale as I am 10lbs heavier than I have ever been in a frame and my weight is still creeping up. My brother was 30 on the 30th and we had a brilliant time at a friend’s Chinese restaurant - it was a really good way to finish off the year.

It’s not been a good year but it has been a testing one, physically but even more mentally. That is now behind me and I have had a wonderful Christmas and New Year, so more of the good times for 2011 please.

All the best for the New Year and decade!

Ade

Written while under treatment

I was born with Talipes (club foot) which is quit a general term for deformities of the foot and ankle. Mine was not a deformity of the foot but of the position of the foot as it was facing the wrong way. The foot was slowly over time pulled back round with bandages and I walked at a normal age.

When I started school I struggled to learn and had a bit of a stutter and can vaguely remember going to speech therapy for a while which must have helped as I can’t remember it being a problem for long. I did love sport though, I took part in everything I could, I was good at most sports but didn’t overly excel in anything but just really enjoyed doing something that came more natural than studying  and took up Roller Dance Skating outside school at a young age.  I took up couples skating and myself and my partner won the youth British Championships, made the British team and Competed in Germany. I gave up skating at about the same time as finishing school, I had just moved on and had no enjoyment in training anymore.

When I was in my 20s I took up kickboxing, gaining my black belt after 2 years of training and then changed clubs. I joined Invicta Kickboxing which is a very good, established club and I decided I wanted to re-take my black belt as I felt the standard was better at this club. I passed my black belt again and stayed with Invicta and Coached for them in my home town of Ashford for many years.

When I gave up Kickboxing to be honest I felt that the risk of injury for the rewards I was getting was not enough, I was training hard quit often sparing people allot heavier and didn’t want to end up badly injured. Invicta Kickboxing is a brilliant club though with some brilliant fighters and the head coach Ray Askew is just the nicest bloke and best coach I could have wished for. Even after so long I still keep an eye on the Invicta Kickboxing web site to see what’s going on.

Pieces Written while undergoing treatment

On the 9^th February 2003 While in France I broke my right leg in a snowboarding accident, it was a spiral fracture, it had broken both the right Fibula and Tibia but at the time didn’t seem to serious as fare as broken legs go.

I was originally treated in France where I had an operation to have a plate put in the leg, then my local hospital. After about 7 months my plate snapped and after problems that came up when they operated to replace the broken plate, basically infection plus non-union, I was transferred to Kings College Hospital and have been undergoing treatment there ever since. I had 3 frames on between 2005 and 2009 and all in all I had a frame of some sort on for three and a half years, I started with an Ilizarov frame and then had two Taylor Spatial frames.

KEEPING BUSY

I had been back from France for a week and decided that as I had all this time on my hands and didn’t want to watch TV all the time plus didn’t want to get out of shape to get out in the beautiful weather we was having at the time and do some weight training. I had a bench in the garden and a couple of dumbbells, I used to put my leg up and just do what ever I could, I would just work round the injury and just do things at my own pace there was no hurry. I also had a go at swimming in the first year but it was the one sport I could never really get the hang of even before the accident as I had done everything from pairs skating to kickboxing. It was only while in the Taylor spatial frames that I really started to make progress with the swimming it was obviously hard work with all that metal work but over the space of two years I went from struggling to do 5 lengths to doing 100 lengths.

I was originally a bricklayer and at the time of the accident had a good job working for a small retail maintenance firm, we went all over the country doing general maintenance and small building works. I spent allot of the time on motorways and working away but really liked the work as it was very varied and I got to meet lots of different people all over the place. It was about 6 months after the accident when things weren’t going to plan when I started to think about what else I might be able to train as just in case my leg didn’t heal. I still wasn’t to worried at this stage but thought I would use the time to go to some of the adult ed free classes they where advertising at the time as I had done terrible at school and I have trouble learning. I first did the maths and English courses for the first year, then after that did some of the courses that weren’t free, ECDL computer course, and various bookkeeping and accounting courses.

While in my second frame and doing an NVQ accounting course I won a Career Development award but was not able to go to the ceremony and pick it up myself because I was in hospital having an operation. They said it was a very nice do though as some of the girls went on my behalf and by the sounds of it drank my share of win as well, which I thought was nice of them.

STARTING SOMETHING NEW

My final frame came off in February 2009 after six years plus of treatment, if it wasn’t for the encouragement and care I received at Kings College Hospital I would not be in the position I am now. Within 4 months of the frame being taken off I competed in my first ever triathlon, it was a novice event which I came 7^th out of about 50 I think, so a big thank you from me to everyone who has looked after me over the years. I have continued with the triathlon and belong to my local club, Ashford Tri, they have encouraged me, made me feel very welcome and part of the group which is always nice.

I am doing a sponsored triathlon in Lydd, Kent in September for Kingpins and anyone that wants to come along and watch is more than welcome to do so, although I can’t guarantee a dry day, brolleys might be needed.

The distance will be

1500 Meters lake swim

40 Kilometres bike ride

10 Kilometres run

Any sponsorship no matter how much would be hugely appreciated by me and I am sure by the trust!!! I have a just give page http://www.justgiving.com/Adrian-Heathfield/  there is a small write up and some photos on there so take a look.

I am also back to work full time, I didn’t go back to the bricklaying and after the last couple of years at college I didn’t decided to go into bookkeeping either. I saw a job advertised in the local paper advertising a job as a trainee printer and liked the sound of it, they took me on and I have been there for about 8 weeks now and really enjoy it.

I would also like to say a big thanks to Marjorie and Mark my Mum, Dad and brother, Philip who have always been there for me through some quit tough times.

Update August 2009

Due to an accident on the 13 August my leg has refractured, I was on the way to a hospital appointment on my bike when the chain came off. I don't know if the leg broke before I came off as I felt my foot catch on something or whether it broke when I hit the ground. It was a bit of a mess this time being quit a big compound fracture.

I had an operation in Ashford at the William Harvey Hospital, coincidentally where I had been heading for my appointment on my bike and they just washed out the wound and the leg was put in a back slab. I had already requested to be transferred to Kings and had explained my history to Joe who did the surgery in Ashford. I was transferred the following day and had my 4th frame put on, on the 15 August, 1 day before a planned triathlon in Worthing, bugger. 

The most important thing though is that I am still here as it could have been so much worse as I was crossing a road from one path to another and was very lucky there were no cars coming.

I had only been back at work full time for 8 weeks so have lost that job as was on a 3 month trial. I will say that they have been very good and have paid me full pay right up to the end of September which they are under no obligation to, which gives me breathing space and time to fill out all those lovely forms.

I have started back swimming and while it is hard, slow work even after so many years of swimming with the frames on I still get a great sense of achievement from every little goal I achieve. I think for me atleast that this is the key to make small goals that you can achieve on a weekly basis and the long term goals will follow as a result of them smaller achievements. 

I am back to doing my physio sessions 2 to 3 times a day and think they are the key to success while in the frames if you want to go back to an active life after the frames. I completed 2 triathlons, did lots of long runs some cross-country over the South Downs and did some distance rides on the bike in training and think this is due to keeping active while in the frames. I don’t know if the leg was still a little weak or if it was just bad luck as I can’t say when the leg broke as it all happened so fast, it could have gone when it caught the back wheel or when I hit the deck.

“Don’t wish for an easy life, wish to be a stronger person”

Last Stand

Dover Regatta 03 July 2011

This was my first event in over two years and the first time I have done a stand alone swim event. I was planning on doing last year’s regatta but after problems with my leg could only watch what was a very rough swim with brutal waves!

This year though we had scorching temperatures, no wind and very calm sea. I had gone along in the morning to support at Canterbury Tri first then Pod 3 lakes and was feeling very confident if a little tired. Lee and Chris had come along to do the regatta as well which was really good to know I wouldn’t be the only one in a wet suit as they had a smaller entry this year. They had offered to slow down and swim with me but I told Lee I would rather they go for it as they would probably sink trying to swim as slow as me. I’m slow but I always get where I’m going, eventually!

I was doing the event for the Kings College Limb Reconstruction Charity and was starting to feel the nerves a little as the trustees where there taking loads of photos. I also had to patch up one of the protective rubber caps on my frame that had come off and gotten lost.

We all went to get ready then had the safety talk which was very thorough and also got told about the rout to follow round the buoys. Lining up at the beach edge the nerves subsided a bit and I just wanted to get in there and with a little help from Lee made my way in. We all swam over to the wall where the start was and waited till everyone was touching the wall then the horn sounded. Everyone went off like a rocket, I waited a second worrying about kicking someone with the frame but had no need to as they had gone off so fast there was no one near me. I followed suit but went off to hard and even on the very calm day found that my sighting was really off and found myself zig zagging allot. The swim to the first buoy seemed to be endless and didn’t seem to be getting any closer but was pleased to hear allot of people say the same after the race. The second buoy was only about 100 meters away and then it was just a case of heading back across the harbour to the start which seemed like a breeze, I still zig zagged a bit but felt strong! It also helped that I had caught up to someone after the initial start swimming the first 750 without seeing any swimmers as they were so far ahead. After Lee had finished he swam back to me and swam with me till I reached the finish and helped me out so big thanks to him and the big cheer I got at the end from family and supporters always helps!

Times:

Chris Hallam 27.59

Lee Gladwell in 28.17

Adrian Heathfield 40.14